Dear Colleagues,
At the moment we are about to explore different forms of financial facilities for our voluntary project OrphanAnesthesia. We would like to establish some fundraising / crowdfunding facilities. In order to improve and reinforce our publicity for OrphanAnesthesia, we would like to ask all contributors and/or interested readers to send us all relevant information you might have.
Has there been a treatment case in your hospital which has been successfully managed based on an OrphanAnesthesia recommendation? Can you tell us an example when OrphanAnesthesia has been useful in your clinical practice for the management of a rare disease?
Of course all data would be used anonymized and after approval. Maybe there would even be the chance of getting in contact with a patient with a rare disease so that we could be able to place a success story on our website and/or use it for PR activities. (of course subject to patients' approval). This campaign is intended to draw the public attention to OrphanAnesthesia.
Please feel free to get in contact with us! We are thankfully looking forward to receiving any kind of information, e.g. a success story, some clinical background story etc. based on OrphanAnesthesia!
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Moreover, the OrphanAnesthesia Team wants to wish HAPPY EASTER to you all!