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Welcome to the Project OrphanAnesthesia |
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“OrphanAnesthesia” is a common project of the Scientific Working Group of Pediatric Anesthesia of the German Society of Anesthesiology and Intensive Care, Orphanet, the German Society of Anesthesiology and Intensive Care (DGAI), the European Society of Pediatric Anesthesia (ESPA), anesthetists and disease experts with the aim to contribute to the patients' safety by promoting recommendations for anesthesia in patients suffering from rare diseases.
The project was initiated by the Scientific Working Group of Pediatric Anesthesia of the German Society of Anesthesiology and Intensive Care in 2005. At this time the idea of an open access database with information related to anesthesia in patients with rare diseases was born.
Recognizing the dimensions of this idea, the search for a European organization providing a suitable framework began. At the Beginning of the project “OrphanAnesthesia” was inspired by Orphanet, which is a well-established portal for rare diseases and orphan drugs. For the future we will cultivate a close partnership with the European anesthesiological societies.
"OrphanAnesthesia" will prepare and publish concise recommendations for anesthesiologists as well as patients to help in planning and performing anesthesia in patients suffering from rare diseases. These recommendations will be peer reviewed readily accessible and reflect the best evidence available.
For the project
Tino Münster, Erlangen (Germany)
Uta Emmig, Verbania (Italy)
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Last Updated on Monday, 18 July 2011 20:58 |
