a project of the German Society of Anesthesiology and Intensive Care Medicine

 
 

Patient Organisations

Here are links to informations, patient organizations and self-help groups:

 

ACHSE - Allianz Chronischer Seltener Erkrankungen e.V
www.achse-online.de

ZIPSE - Zentrales Informationsportal über seltene Erkrankungen -
German database on rare dieseases and patient organisations in Germany

www.portal-se.de

Patienten-Informationen vom Ärztlichen Zentrum für Qualität in der Medizin (ÄZQ) -
Patient Information from the Medical Center for Quality in Medicine,
by the Association of Statutory Health Insurance Physicians
www.patienten-informationen.de

Deutsche Gesellschaft für Muskelkranke e.V.
German Society for muscle diseases
www.dgm.org

LEONA – Familienselbsthilfe bei seltenen Chromosomenveränderungen e.V.
Support group for parents of children with all kinds of rare chromosome disorders
www.leona-ev.de

EURORDIS - European non-profit alliance of 851 rare disease patient organisations


 

 

 

 


 

 

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